We just confirmed that my newest niece, Adrianna, has achronoplasia, which means that she has one of the forms of dwarfism. My sister and her husband are still digesting this information, and trying to figure out what it means and how raising her will be slightly different from her older two.
If anyone has any tips, websites or experience with this, we’d love to hear from you. Adrianna is currently 2 months old, so she’s still very young. Her older sister is 5 years old, and her brother is 2 almost 3.