We just confirmed that my newest niece, Adrianna, has achronoplasia, which means that she has one of the forms of dwarfism. My sister and her husband are still digesting this information, and trying to figure out what it means and how raising her will be slightly different from her older two.
If anyone has any tips, websites or experience with this, we’d love to hear from you. Adrianna is currently 2 months old, so she’s still very young. Her older sister is 5 years old, and her brother is 2 almost 3.
Your family is our prayers. I hope that they find comfort and strength and find the information they need.
By: chellie on January 18, 2008
at 10:56 am
Hi! I’d like to invite you to my blog at http://blogsmonroe.com/disability
My son Knoah was dx at 30 weeks inutero and confirmed at birth. If you have any questions, contact me and I can lead to places that can help!
Best Wishes,
Tonya
By: jannob on January 18, 2008
at 5:12 pm